About Dying

A personal oddessy of terminal illness, acceptance and regeneration.

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Location: Monterey, Ca., United States

 

Also by WriterByTheSea

Wednesday, December 13, 2006

Journal: 12/13/06

All right, I can’t blame my friends; I know they were being polite. After all, you really can’t tell a nut-job that they’re a nut-job. It’s not polite, and the nut-job won’t listen anyway because he’s ALWAYS right. Right?

I have only myself to blame. No one else, no outside parties, no mystical "higher power," like Fate. Just me. Only me. All me. My bad.

I’m supremely thankful that I still have friends. People who actually give a damn about me and have enough sense to steer clear when I’m wearing my nut-job hat. Like Rose and Bill. Maybe David (Joann’s son) too. I count him as my friend, I hope he counts me as well.

It took me eight months to make the connection. By normal people standards, that would be considered retarded. Okay. Call me retarded, emotionally downs-like (I don’t want to give a perfectly respectable syndrome a bad name by association though), morally hydrocephalic, intellectually miniscule. I deserve it.

In my defense though, there are certain things you learn only from first-hand experience. Immanuel Kant would have called it "practical reason," "a priori" (relating to or derived by reasoning from self-evident propositions), things that need to be experienced and through that experience, we learn. Freud would have called it "Napoleon Complex." What I wound up with was "a posteriori" (relating to or derived by reasoning from observed facts).

Who knew that keeping your dead wife in a box on the living room table for eight months was a bad thing?

Obviously, not I, but apparently everyone else knew. Rose says that that was the reason she hasn’t been over to see me for eight months. Bill candidly states that he lived through it, but I can see veins throbbing at his temples when he claims that.

I thought that I was carrying out Joann’s wishes. I believed that this was normal mourning, grieving behavior. I can just hear the shrinks chortling over that as they draw up the commitment papers. A genuine, class-action internment in a nice, comfy room away from all the bad effects of reality.

Geez guys. I’m really, really, really sorry for all the horsey stuff I made you people slog through. I am wiser though. Not any smarter, maybe, but a hell of a lot wiser. Not to mention greyer.

Acceptance

Joann is free now, and I can finally wrap some closure, acceptance, around her passing. Sunday and Monday went along fine, slipping past as smoothly as oysters on the half shell. Yesterday, was another thing altogether. Rose pointed out that eventually stuff like this comes full circle and bites you on the ass. At the moment, I have a band-aid on my butt the size of Texas. Sorry, I don’t mean to malign Texas, but after all, aren’t you the people responsible for Dubya? You elected that fool enough times.

With closure, acceptance and a day of binging on booze and rock music, comes the return of normal bodily functions, like breathing. It also gives me some distance.

I will always love Joann for who she was, one of Monterey’s Florence Nightingales, a woman who simply couldn’t stop helping others, even though she was in trouble herself. She loved purple, kitties, anything stray on four legs or with feathers.

And, she loved me. For that, I’m immensely thankful.

Moi?

Where to now? It’s different being alone again. I don’t want to be who I was pre-Joann, I don’t know who I am post-Joann. At least, not yet.

Turn the page, get a clean sheet. I can be who I want to be. Not many people have that opportunity.

I do.

Sunday, December 10, 2006

Journal: 12/09/06

When shall we three meet again? In thunder, lightning, or in rain? When the hurly-burly’s done, When the battle’s lost and won.

William Shakespeare (1564–1616), Macbeth, act 1, sc. 1, l. 1-4 (1623). (I attempted this quote after spreading Joann’s ashes. It refers to the three Musketeers of Snug Harbor: Joann, Bill and I.)

David, Joann’s son, and Michael arrived today at about 2:30 in the afternoon, ending several hours of anticipatory waiting. Actually, they were right on time, my edginess was more about the upcoming trip to Bixby Creek Bridge and the spreading of Joann’s ashes than any real frustration with David or Michael. I was just being impatient, a worrywart and my usual "control-the-universe-by-force-of-will" thingy. Just a measure of how much I wanted this event to come off, needed it to be real, realizing somewhere in the recesses of my head that this could be the defining turning point of the last eight months.

When they arrived, we went up to the Front Desk and I checked them in. They had had a long trip from Sacramento and it had been raining, I figured they needed a moment or three to take a break, and I was right. Half an hour later, after I changed into something fancier than my usual jeans and Hawaiian shirt, the four of us (David, Michael, Bill, and I) were on the road to Bixby Bridge.

The rain held off, though there were drizzles, and the driving was easier than it would be coming back. I have not been down to Big Sur for several years and somehow I had it in my head that the bridge was only a few minutes south of Carmel. Actually, the drive took half an hour, though it seemed far longer. Must have been the anticipation thingy again. I idled my time stroking Joann’s urn and taking in the sweeping vistas of gorgeous coastline and windswept sea.

Goodbye, My Love

Bill, having been through this once before with his friend Bernie, knew the exact place. David did as well, because he grew up around Big Sur. Michael and I, well, we relied on their guidance and trusted that they knew what they were doing.

The place of ashes, so to speak, is a promontory overlooking the Bixby Creek Bridge and the sea. Once there, and without a consensus plan, everything sort of fell into place. I knew that David and I needed to do this together. For this to work, for us to be set free, we both needed to spread Joann’s ashes.

I went first, the wind lulled a bit, and I gently fed Joann’s ashes into the weakening blow. It wasn’t a strong wind and several clumps of ash fell to the ground, leaving three small splashes of ash on the deep-red soil overlooking the bridge.

David went next; grabbing the bottom of the plastic bag half-filled with ash and flung them out of the bag high over the creek chasm. As he started that motion, a great hurling effort, the wind picked up and not one of his mother’s ashes touched the ground.

David and I stood there for a moment, unsure of what to do next or maybe just savoring the moment that we set Joann free. We both needed to speak, speak about and to Joann. I had started spreading her ashes; it was only fitting that David should speak to his mother first. He spoke a beautiful poem, like a prayer and snug to the moment, into the wind that had suddenly picked up to near tropical storm strength. I went next, speaking the first lines of Macbeth, harking back to the days that the three of us, Joann, Bill and I, moved into Snug Harbor, and the promise that we three would be together again, in time.

Into the gale, looking toward the sea that Joann loved, I said, "I love you, Joann," David said "Goodbye Mom." I would say goodbye later.

David and I were the main actors in this little drama, Bill and Michael our seconds. Joann, one with the world once again, the four of us piled back into the car. David wanted to go a little further down the road to the River Inn, for memory’s sake and that sounded like a good idea.

Rain started drizzling, the wind was at our backs and all was right with the world as we set out through the old-growth redwoods standing sentinel.

Rocky Point

By the time we left the River Inn and headed north to the Rocky Point Restaurant and dinner, rain was coming down in angry fistfuls, ground fog reflected the car’s headlights like a white sheet. Michael, who had never driven the Big Sur highway under these conditions, discovered that this was a white-knuckle challenge. All of the car’s windows fogged except for the front and rear, Bill and I in the back seat could only peer myopically at the road ahead of us as we scouted for errant deer. Lucky for us, deer, as it happens, have better sense; they do come in from the rain.

The four of us were early for our reservation, but the weather kept people away and we did not have a problem being seated. I had never been to the Rocky Point Restaurant before, so this was a new experience, regardless of our reason for being there. That it was dark outside in no way diminished the wonder of it for me, a spectacular piece of Big Sur history that I have read about but never visited.

David ordered the prime rib, Michael the petit fillet, Bill the trout and I the lamb chops. The food was excellent, but the most striking feature turned out to be the baked potatoes. They were simply huge. These tubers occupied half the plate. I don’t think I have ever seen potatoes as large as these anywhere, certainly not in a supermarket, and not in a restaurant either, that I can remember.

There was little talk, David spun out a few memories of growing up in Bug Sur for Michael’s benefit, Bill and I mainly listened. Yet, there was a comfortable camaraderie amongst the four of us, a silent but tacit knowledge of having taken a hefty personal step forward.

Once, when I went outside to smoke and visit with the rain, I reflected on how the downpour was taking the three splashes of ashes down to Joann’s beloved sea. It was, I thought, fitting, and all was well with the universe once again.

Searching Through the Remains

The drive home was far less treacherous, the rain had abated somewhat and ground fog came only in infrequent patches. The Monterey Peninsula, Michael called it on the road back "civilization," but to those of us who truly know the place, the civilized work in corporations and the uncivilized write books and paint pictures. We like it that way.

Once back at the motel, David and Michael retired to their room, as Bill and I did to our respective abodes. We all needed a breather before the next step in the cosmic play of making Joann, and ourselves, whole.

Alone, I could finally say "Goodbye, sweetie."

An hour later, David and Michael came back to my apartment (somehow, no longer Joann’s and my apartment) to begin the dissection of Joann’s remaining belongings. I figured that I could leave Bill to nap a little longer before I called him, and that decision worked out well. Bill didn’t need to be there while David made his choices, but Michael needed to be there for David’s moral support.

I placed all of Joann’s remaining belongings by "her" side of the bed; I think that made it easier to have everything in one place. Turns out that many of her belongings were things that David had no real attachment to. However, he did take the pictures that were on her memorial because they were of his grandparents, and the purple quilt off my bed that his (great?) grandmother made. There were also some CD’s of hers that he liked, as well as her gold cross. He left the clothing for me to recycle, which would mean into the Dumpster.

After the "picking," I called Bill because it was obvious that time was running short. Everyone was tired, I had more work to do and I must give Bill the chance to serve his freshly baked mince pie. We shared some conversation; I got David’s address so I can mail him a Christmas card. I also told David that I would put all of the pictures I took of Joann across the three years we lived together on a CD and ship it along with the card.

Hugs all around, and David and Michael were gone. Time for themselves, space for David. They will leave before I get up tomorrow and that is okay, by dawn, this place will probably not resemble the place they knew. Bill stayed around for a while, lending his own moral support to me for the next phase.

Cleaning Up

Immediately after David and Michael headed for their room, I got busy deconstructing, reconstructing, saying my goodbyes to the other two ghosts of Snug Harbor.

Deconstruction came first—the soft, clothing items I wanted to save of Joann’s after David’s picks went into a large, plastic storage box. In the same box went the teddy bears surrounding her urn memorial, the Pink Pantheress I bought her for Valentine’s Day (the day she came home from the hospital for the last time) and stood sentinel on her urn for the last eight months. Also, her Christmas ornaments that adorned her memorial for the season; I removed the batteries from her sleeping teddy angel (snoring thingy) and it went into the box as well. Her urn, empty now, went into the storage box first (although I’m not sure why) along with her favorite sweater and woven red blanket she curled up on the couch with throughout my years with her. Her costume jewelry was carefully laid on top, mementos, not to be viewed, but to be kept as a loving reminder. Box closed, until further notice. Deconstruction done, plastic storage box went under the table with its fellows, beneath the Christmas tree, a present not to be opened soon.

Continuing my whirlwind, Reconstruction came next. The lilac bed comforter and pillows of the same stripe were bundled. Clothing from her suitcase and other, non-recyclable, leftovers of her went into the same bundle, carried with great haste to the Dumpster. Her desk and portable typewriter remain, furniture that I can use in future, or give to David when he has space and if he wants them. Until then, I will keep them, the typewriter because I used such a machine in the hoary old days of the Sixties, the desk because I like it. In a final act of reclaiming my space, I put a motel bedcover over the sheets I sleep on, solidifying the concept that I sleep alone now. I’m okay with that.

Last, but not least, it was time to confront the other two ghosts in my house. The portrait of John Woodruff that hung over the memorial of Joann’s urn, came down and a painting by Bill took its place. John and I didn’t have a conversation, I merely told him that it was time he went his own way, as I have to go mine. The portrait photo of Mildred, Joann’s mother, which hung over my desk, received the same treatment, an explanation, a promise of a continuing place in my heart, and an assertion that it was time to move on. They were both important parts of my life, a segment of living that is now consigned to the pages of books I write, not to be carried on my back for the rest of my life.

Empty Nest

Bill is snug in his bed across the way. I have no tears left that haven’t been shed over the last eight months. There are no more ghosts hanging on my walls and when I mutter to myself, I’m talking to me again, not a memory.

There is a feeling that I have not had for three-and-a-half years, a distinct sense of aloneness, a solitary note finely pitched with sadness, but a whole note, neither wailing nor dirge.

Tomorrow will be a different day, and I’m looking forward to it.

Journal: 11/29/06

National Novel Writing Month is over, and so is another stage of grieving. The current novel writing effort was grueling, though I saw it as a task that had to be done, particularly for my own sanity.

About Dying: A Memoir (54913 Words)

This year, instead of writing about the aspects of my life that I love the least, most of my readers knew that I was writing about the eight weeks I took care of Joann in her final days. Essentially, I relived not only those eight weeks, but also our entire three years together, arranged as flashbacks of the significant events in our life together, interwoven with the daily narrative of Home Hospice that I kept on this blog. It was a "novel" idea, I thought, using my blog as the outline for the book, an idea I will use over again.

However, though I was in possession of the outline, I underestimated the impact of going back over history with a fine-toothed comb. Setting out on this venture, I realized that there would be some emotional issues I would have to deal with, issues that I had not come to grips with yet, but seriously needed to as part of my "closure." In some small way I have managed, as the benefit of writing this book, to deal with some details surrounding Joann’s passing and my own immobility for so long afterward. I know I am a better human for having come this far, almost fifty-five thousand words, with Joann’s memory, but I’m not done yet—with the book or fighting through my depression over her loss.

I know I have a long way to go still. This is the first book attempt in five years that I feel like I really want to finish. It was one of the goals of the blog to present Joann’s and my experiences, both sides of the coin, so to speak, to others in the same situation, and the book serves this purpose also, maybe in even greater detail that the blog itself. I also recognize that going through the process of finishing the book is yet another league or two down the road to my being able to live without her in a productive and satisfying way. The two go hand in hand, leastways, that’s how I envision it.

In terms of getting the book ready for its first editing cycle, I am only half complete. To make it saleable I need to add another fifty thousand words to what I already have. That won’t be hard, so far I’ve really just written the main narrative, now I need to put some life into the characters, detail the stories better, and make the whole thing flow smoothly.

It was an alternately exhilarating and depressive experience, this year’s book writing, on many different levels. I feel that I have made progress both in my writing by having something that actually resembles a book, and through the cathartic process of grieving. I’m not finished with either, but I am comfortable with the progress I’ve made.

Journal: 11/23/06

The day has arrived, and I’m up early. My part of the dinner is making the yeast-risen rolls, and they require time to thaw and rise. The turkey needs to go in the oven before ten o’clock, otherwise it won’t be done for dinner by five o’clock in the evening, our carefully strategized dinnertime.

With all that in my sleepy head, I arose at 8:00 AM and made the rolls ready. Cloverleaf’s this year, but the last time for them as well. Cutting the frozen dough balls in half just about wrecked my hands—another sign that the MS is becoming a serious problem.

After I finished, I called Bill to wake him for the turkey-stuffing party. Weighing in at twenty-three pounds, I thought it would take both of us to wrestle it into position to stuff. In the end though, Bill managed it by simply spooning in the stuffing. Bill made enough stuffing to make some outside of the bird, but we were both surprised at the amount left over. Over half of the prepared stuffing remained.

Turkey went into the oven at 10:00 AM, and we set off to Safeway and the eggnog. I needed to buy some Lactaid for my lactose intolerance as well. Not much keeps me away from the eggnog at this time of year.

Safeway was on the way to Rose’s place, whom I promised I would share some ‘nog with. What holiday would be the complete without visiting family? Anyhow, she didn’t want to come to dinner, so I figured that a short visit was the least I could do.

Back home and after a short nap, the turkey came out of the oven. The rolls, nicely raised with only a little damage from being stuck to the paper towel covering them, went into the oven. Naturally, I forgot to check the oven temperature and misread the heat on the package. They came out okay, it just took longer and the bottoms weren’t what they should have been, but delicious anyway.

Regardless of missteps—none catastrophic—Thanksgiving dinner went on the table at the time planned. Pictures to memorialize the occasion were taken and as a last minute decision, a place wasn’t set for Joann. This would be just between Bill and me.

Thanksgiving 2006

This is the first Thanksgiving since Joann passed away. I went through the day with my memories and a little sadness, but it wasn’t the heart-rending event I had imagined. Sure, a few tears were leaked, the occasional sniffle heard. A toast to Joann said, a silent prayer given. Nothing more was needed, or necessary.

There are many things I have to be thankful for this day. I’m thankful Bill is healthy and enduring well, that Rose is still on the Peninsula and my good friend, that I have a job and can pay the rent. Mostly, I’m thankful that Joann is still a part of my life, and that I have the support of my friends. All things considered, I’m doing well.

Journal: 11/22/06

The holidays are here and Snug Harbor glows with anticipation. I worked the day, but tomorrow is time off for the feasting.

Turkey Day Pre-Game

The turkey is thawed, out on the counter, mince pie is being baked and Bill has done the stuffing to where it is ready for the bird. Tomorrow is the day and everything is set.

Yes, the Holidays are here and the three of us couldn’t be happier (Joann is included in this). Wondrous, memory-inducing smells permeate the home, recalling a time of grandmothers and family.

With the coming of Thanksgiving, the doors of Hanukah and Christmas open. Grown men turn into children once more, however briefly. In that spirit, I will sleep the sleep dreaming of sugarplum fairies dancing in my head.