About Dying

A personal oddessy of terminal illness, acceptance and regeneration.

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Location: Monterey, Ca., United States

 

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Tuesday, November 14, 2006

Journal: 10/14/06

Everything looks better after a night’s sleep, so they say, and it might be true. A night’s distance and a hot shower help put things in perspective.

Feeling Better about Yesterday

Now that I’ve had my little flash of anger and fit of depression, I’m feeling much better. I get frustrated with the system because of my job situation and unavailability of services. I keep thinking that if I could nail some of my physical problems I would feel better and be able to accomplish more. At the same time, I also know that I’m caught in a poverty cycle that will be almost impossible to break in the near future. After all, I live in a town without opportunities other than picking lettuce or working a front desk.

Looking on the pragmatic side, I’ve got a doctor who will look after me, though she can’t do anything except give me the occasional free inhaler and write prescriptions I can’t pay for, but it’s a start. I have to figure out what to do next, maybe apply for some program at the county hospital in Salinas. Lately I’ve seen ads on TV about programs sponsored by drug companies that aim to reduce the financial burden for people who can’t afford medications; that is worth exploring. What I really need though, are some X-rays and other tests run to see how far downward I’ve progressed in the last nine years since my surgeries, and where I stand on my increasingly crippling neurological disorders. My doctor can’t order any of those without some support from insurance or the county though.

Still, I did achieve the final requirement for General Assistance and that $133.00 a month will help pay for some medications and the tools I need to get off cigarettes—again. I have a nice, stable place to live, my job isn’t as terrible as it once was and Bill provides the food. The rainy season is coming, so, it could be worse.

Dumping Cigarettes—Again

The first time I stopped smoking was on April 10, 2005. I stayed off cigarettes for a full ten months, until Joann became so sick the last month before she died—and required so much of my time and effort—that I returned to cigarettes because they were cheaper than the nicotine tablets I used and gave me something else to do with myself.

Nicotine tablets worked for me where patches and gum hadn’t. Nine years ago I tried to stop smoking prior to my back surgeries and, even with the aid of patches, couldn’t get down to less than three cigarettes a day, no matter what I did. Later I tried gum, but the technology was in its infancy and tasted so bad that I tried chewing tobacco until my mouth went numb, and then I went back to smoking anyway. At that time I was an "indoor" smoker and going through three packs a day.

A couple of years later, realizing that I had to do something about my breathing, I started smoking exclusively outdoors. This cut me down from three packs to fifteen cigarettes a day within a two-week period. I have managed to stay that way ever since.

When Joann, Bill and I lived in Snug Harbor, I began having trouble climbing the flight of stairs to our front door, and even more problems carrying up the groceries from our extensive shopping trips. Joann, moving ever closer to the end of her own life, became worried about my health and nagged me into trying to quit smoking once again. This time I used the new nicotine lozenges I read about and discovered that they actually worked. Within two days I was cigarette-free, and never looked back for ten months. I wasn’t actually following a stop-smoking regimen, I simply replaced the source of nicotine. I told myself that sooner or later I would actually quit the lozenges, but I guess the motivation was never really there. No matter, it kept Joann happy and I could haul myself up the stairs with greater ease.

Its been nine months since March of 2005 when I went back to cigarettes and though I’ve stayed an outdoor smoker averaging fifteen cigarettes a day, my body is screaming at me to at least get back on the lozenges. Propelled by the reality that I now have to use a heavy-duty inhaler twice a day and that things can only get worse, I’ve finally capitulated and decided to make a committed return to the nicotine lozenges.

I couldn’t have picked a worse time for this enlightened endeavor—the lozenges cost twice as much as cigarettes do—but knowing I will get General Assistance that I can use to cover part of the cost, moving back to lozenges seems feasible. Anyway, Joann is nagging me about my smoking again and I did promise her that I would take care of myself in her absence.

Moving On from Here

The events of the last couple of days illustrate to me the width and depth of the chasm separating my current life from that of life with Joann. There are so many differences, small and large, I have come to accept as normal now; that it takes something as derailing and exasperating as trying to get medical support, to remind me how contented I was before. If I were to look at it, I would have to say that I haven’t begun to remake my life. I am still sitting here in the same place I was the day after Joann died, and don’t seem to have the will to move on.

The concept of building my life again is as foreign to me right now as death itself, and equally as immobilizing. Even writing these pages is an exertion, where in the beginning it was a freewheeling act of liberation and renewal. That is one reason I quit writing this blog daily, though I should not have stopped, just to keep in touch with myself.

Maybe my being mired in this mud-of-life is because I’m still in Joann’s past, unable to move forward through an invisible wall of memory. I keep expecting things to get better, for myself to feel better, to become more active, more proactive in setting and pursuing goals. Instead, the farther Joann sinks into the past, the more distance there is between me and my present self.

I don’t know how to move on from here. A change of town isn’t the answer because Monterey is my home. Switching jobs isn’t attractive because I would lose my apartment and all of its perks. Every one of those things constitute "running" and this is a problem I will carry with me no matter where I go.

I guess that’s where I’m at.

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